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Calming The Fibro Flare!

Disclaimer: before we get started I do need to state that I am a current warrior with chronic pain due to fibro and I am in no way a medical professional by license. I am not advising you to change any current or future treatment plans you may be on. I advise you to consult your own medical team before trying or making any changes to your current or future treatments. 

Physical therapy can Eliminate or Reduce Pain helps you to Avoid Surgery, and Develop Mobility. Recover from a Stroke or other injury, Recuperate From a Sports Injury Improve Your Balance, and Prevent Falls. It can also help Manage Diabetes and Vascular Conditions as well as Manage Age-Related Issues. So now  Aqua therapy is my favorite form of therapy. The water helps support your joints and allows you to move more freely than you can on land. I’ll tell you that what is called elephant legs is real. Basically, it’s when gravity hits you once you get out of the pool. You feel so heavy and hours after the therapy is when you will know how hard you have been working. You will be sore but you also will know that you have gotten a good workout if you stick with it. Will help you get stronger. In addition to all the other Benefits of Aquatic Therapy Increase joint flexibility.  Pool therapy offers a tremendous advantage because it reduces the effects of gravity allowing for increased joint range of motion crease in muscle strength Decrease in pain Decrease in abnormal tone, spasticity, and rigidity

Regular gentle exercise is one of the most effective ways that fibromyalgia flare-ups can be avoided or diminished and pain managed. Exercise in moderation may increase pain at first but may help prevent or improve pain over time and build up endurance, muscle strength, avoidance of depression, and boost moods. Physical therapy techniques aim to improve your range of motion and strengthen the muscles. This can also help reduce FM pain. Your therapist will tailor a program to help manage specific symptoms. They can also teach self-care techniques, including FM education, to help you manage the fatigue and pain on your own. Its been shown that pain management education can lead to increased performance during exercise. Tai chi is one of my personal favorites is the mind-body technique involving deep breathing, meditation, and controlled movements. Tai chi can improve muscle strength, balance, and stamina. It’s not strenuous, but you can develop sore muscles or sprains if you overdo it. Above all, consider all your options and ask questions, try things out and remember that you don’t have to do all the things at once. Try one see how you feel take a break then pick another activity rinse and repeat. 

Pharma Meds

antidepressants used in the treatment of chronic pain include amitriptyline and nortriptyline (Pamelor). They may be prescribed to relieve chronic pain including duloxetine (Cymbalta), (Effexor XR, Fetzima, Savella).

Cbd

Driven nutrition https://www.drivennutrition.net/

Charlotte’s Web™ FULL SPECTRUM HEMP OIL Gummy – (Sleep, Calm, Recovery) – Raspberry – Sleep – 10mg 60ct

Charlotte’s Web™ FULL SPECTRUM HEMP OIL Gummy – (Sleep, Calm, Recovery) – Ginger – Recovery – 10mg 60ct

Charlotte’s Web™ FULL SPECTRUM HEMP OIL Gummy – (Sleep, Calm, Recovery) – LemonLime – Calm – 10mg 30ct – LemonLime – Calm – 10mg 30ct

As well as CBD oil 750mg I increased slowly to this level over almost 2years. 

meditation uses neural pathways that make the brain less sensitive to pain and increases the use of the brain’s own pain-reducing opioids. If you have chronic pain, meditation is worth looking at.

 Stretching

Among the most beneficial forms of exercise for chronic pain patients are those that include stretching. There are many proven benefits to stretching including improved range of motion, less muscle stiffness, and better circulation.

Pacing is an essential technique for mastering chronic pain and often involves taking a break before you need to. Pacing may reduce the severity and duration of flare-ups. Pacing may reduce feelings of frustration and low mood through repeated pain flare-ups.

 Support having a strong support system has been by far the best tool I have. To be honest, you will have times when your medicine will not work your tools will fail and your pain will win for that day. So to have the emotional support of your community of pain warriors will mean so much to you. You have them there to not judge you and for you to not need to justify or explain to them anything about what you are going through. At times only needing to say “I’m in a flare right now” is all you need to say. Most times you’ll find at least one other person also in the same spot. In some cases maybe even have the same symptoms. However, that support and understanding will be what gets through to the next moment.

Featured

Welcome to Butterfly Chats

Photo by Anna Tarazevich on Pexels.com

Disclaimer: before we get started I do need to state that I am a current warrior with chronic pain due to fibro and I am in no way a medical professional by license. I am not advising you to change any current or future treatment plans you may be on. I advise you to consult your own medical team before trying or making any changes to your current or future treatments. 

Let’s Talk CBD Baby!

I first started considering CBD about four years ago and I’ve done extensive research on if CBD has had a big enough impact on pain to make a difference. For me, I decided that it was enough evidence that merit a conversation with my care team. I will admit that I was nervous about this talk. Would they think I’m drug-seeking would they remove other pain meds from my current regime would he put me in jail all the thoughts came. However, This is why having a compassionate and open-minded care team is so important. I understand that not all of us have access to this type of care. I’m working as hard as I can to partner with the right organizations with the hopes of bridging the gap between good care providers and the pain community closer. 

CBD has been found to likely be Effective for Seizure disorder (epilepsy).as well as Possibly Effective for Multiple sclerosis (MS). A prescription-only nasal spray product containing both delta-9 (THC) and cannabidiol has been shown to be effective for improving pain, muscle-tightness, and urination frequency in people with MS. 

CBD has helped me in a moderate way by allowing me to shave a few points off my pain point. I started off on 500mg once a day mostly at night to help with sleep. It indeed has helped with sleep and still to this day helps me sleep even though I’ve had to taper up for CBD for pain.

When I sat down with my dr at my normal appointment. I was able to bring up my pain levels and start the conversation on how together we can reduce it. I’m blessed to have a primary dr who specializes in fibromyalgia. At the time he was new to treating fibro but today there are several doctors who are special so it’s worth the time to do a search or ask your insurance company for recommendations.

But what do I say to my doctor?

Bringing this topic up with my dr was easy compared to with other providers but if you the language to use with your provider. Here is what I said.

“ Hey, doctor, id like to ask your thoughts on CBD as it refers to Pain relief”. How do you feel about the research and if you feel it is worth a shot for me to try.”

Like most medications, it is best to do this under a doctor’s care. However, any good distillery will have extremely knowledgeable employees that will know all the dosing and each one works. I will caution you from trying for the first time gas station CBD . not to say anything is wrong with it at all but you know… Use your best judgment.

In regards to side effects or signs that you may need to seek medical assistance. 

When taken by mouth: CBD is mostly safe to take inappropriate doses. Doses of up to 200 mg daily have been used safely for up to 13 weeks. With the guidance of a healthcare provider. There is a specific prescription CBD used at higher doses and for longer durations.

CBD can cause some side effects, such as dry mouth, low blood pressure, lightheadedness, and drowsiness. 

After about a year and a half, I noticed the strength I was using wasn’t quite getting it done with pain relief and sleep at night so I went back to my distillery and decided to up to 750mg. I also use gummies, especially on those busy days when you may not have the time or the company tolerance to take a tenure. Having a gummy handy is very helpful. 

Contact

spooninesupport@butterflychats.com

 If you need food support or school supplies assistance please reach out to me at spooniesupport@butterflychats.com

With your name, phone number, and a number of people in your home and we will get in touch with you as soon as possible.

Adjusting to sudden health changes

Hello my Butterflies,

o glad you are back to see me today. I hope and pray each episode adds value and joy to your life. Please don’t forget to like and share this episode with anyone connected with your chronic pain journey. No matter if it’s a caregiver or a warrior. Also, if you will please leave a review of any or all of my episodes. This will help me know what kind of shows your want to hear. 

Disclaimer: before we get started i do need to state that I am a current warrior with chronic pain due to fibro and I am in no way a medical professional by license. I am not advising you to change any current or future treatment plans you may be on. I advise you to consult your own medical team before trying or making any changes to your current or future treatments. 

 So go grab you something to sip on and let’s get into this topic today. 

When thinking about chronic pain or invisible illness you have to factor in so many other factors that most people in the illness or disabled world may not have to. Considering we look fine and from all outside accounts, all is well with us. To the person looking in who may have a plan with you that day or have some sort of expectation of you. To hear you say that you need to change the plan. Looking at you and wonder why? What’s the deal?  You would say well I just don’t feel well… Which in our languages means “right now I’m seeing three of you and have a searing popping sound happening in my ears. Which means improbably about to faint or need to sit down ten seconds ago.” they look at you and you have simile on your face you happen to be wearing clean clothes that day and look presentable. For you, this is not a huge deal as long as you respect your body and do what it needs you to do. However, for the cancelie( the person being canceled on) they may feel slightly frustrated or maybe even mad or upset. Perhaps because you’ve canceled on them a number of times. They have no idea what physical stress this adds to your already stressed and tired body knowing that you have disappointed them once again. However, you know that you saved yourself and them a ton of embarrassment by not pushing yourself. This would have caused some sort of sense when you had an episode or something all in public. Now no one likes that. 

So taking that into account when you have a chronic or invisible illness you are well served to have a backup plan for when things change. Because they certainly will change. Our health changes are faster than the weather in the deep south. 

Allow yourself to feel you are going to have emotions unless, of course, you are a robot then, in that case, you’ll be fine… You can just stop listening now. The rest of this show is not for you. Lol 

With today’s lifestyle of over-scheduling, most people don’t take time to mourn what they’re losing before moving into something new. Numbing feelings of sadness with new distractions, give your thoughts a voice. Write in a journal, talk with a trusted friend or make an appointment with a therapist. You might even consider honoring the loss with a scrapbook, quilt, poem, or painting.

Be patient with the pace of treatment and recovery. This means recovery means something different to every person. Most people sadly take years to get diagnosed so it’s not hard to imagine that after the diagnosis finding the right treatment that works for you can take a while. 

Be open to change. …

Choose the support that’s right for you 

The best treatment for chronic pain is a multimodal therapy plan that could include intervention from a physical therapist, pain psychologist, complementary alternative medicine (i.e. acupuncture) and self-management techniques (such as changes to the diet and exercises regimes) to help you not only manage your pain

don’t let worries about being a burden keep you from reaching out. …

We often fear being perceived as needy and no one wants to feel ashamed of their situation or appear incompetent. you may feel uncomfortable about asking for help from others because of your chronic illness, remember you didn’t ask for your condition. Accept that sometimes it will be annoying to help you. Offer to help those who help you. Communicate during neutral times. relationships are a give and take. One person may be more equipped to do certain things, like cleaning and running errands, while the other may be better at other things like providing emotional support or advice.

Look for support from friends and loved ones who are good listeners.

Plan ahead.

 If you know change is on the horizon, do some prep work. This may require some extra work and using some spoons but it’s well worth it in the end.

Reframe your thinking.

 Changing the way you think is a task that in some cases may need some additional help. This is where a counselor or a mental health professional may come in handy. A neutral third party with no skin in the game to help you weigh out your options and to see things in a more neutral light. 

Strive to maintain some normalcy.

Structure and routine are comforting, so the more you can maintain your day-to-day in the midst of a change, the better off you’ll be. Go for your usual morning walk even if that walk is shorter or if that walk is with the help of mobility aids.  visit the same coffee shop or order door dash from that shop and try to stick to your normal sleeping, waking, and eating times.

Count your blessings. 

Whether you just received a difficult diagnosis or you’re about to start a new job, counting your blessings in a gratitude journal or sharing the top three highlights of your day with a family member at dinner can go a long way toward making you feel less depleted. Even during difficult times, things like noticing a starry sky or beautiful sunset or watching a colorful butterfly can act almost like a reset button for your mind.

Don’t forget your family, they are also experiencing a loss. They are the observers of you being in pain and suffering and not being able to do anything about it. Especially if your diagnosis is hard to find. The fear of the unknown is also a trauma they are going through. 

I do understand that it’s hard to manage your own emotions and other people’s emotions. It’s ok to focus on yours alone. This is where I would suggest a family counseling service to help them and yourself work through the collective stress your all enduring. I would like to leave you with one image though. Just imagine if the roles were reversed. If you were the caregiver and your family member was the one going through the health challenge. How frightened would you feel knowing your loved one was suffering and knowing you could really do nothing to actively support them or heal them. Even though in truth being a support system by being present and loving and offering care is doing a lot to the person going through the health scare. 

The best thing to do is to not allow yourself to get bogged down in the thought traps. Try assigning yourself a worry period. 

Create a “worry period.”

 Choose a set time and place for worrying. It should be the same every day (e.g. in the living room from 5:00 to 5:20 p.m.) and early enough that it won’t make you anxious right before bedtime. 

Write down your worries. 

If an anxious thought or worry comes into your head during the day, make a brief note of it and then continue about your day. Remind yourself that you’ll have time to think about it later, so there’s no need to worry about it right now. so your worries are more likely to lose their power.

Go over your “worry list” during the worry period.

 If the thoughts you wrote down are still bothering you, allow yourself to worry about them, but only for the amount of time you’ve specified for your worry period. And if your worries don’t seem important anymore, simply cut your worry period short and enjoy the rest of your day.

One thing I’m learning is when it comes to sudden health changes. You have to choose your battles. You will need to have a good handle on what your body is doing and saying. When you observe a new symptom. It’s important to take note of it and to watch it. See if it’s happening because of something you may do in the last few days. See if you are getting any relief over time or if it’s getting worse.  Notice what is making it better or worse.